Evie

Evie has officially been diagnosed as having Chronic Benign Neutropenia in Infancy. Here is a link you can go and read about her illness. www.emedicine.medscape.com/article/954781-overview She will still have level drops, we just do not know when they will occur. We go every Monday now and get her blood drawn to see what her level is and every Thursday I have to give her a shot. The shot is medicine called Neupogen, which will boost the white blood cells to help keep her level around 1500, which is normal. She received her first shot on June 23 and her level was 100 then. Today I gave her a shot for the first time and her level was 300. So, already the shot has helped her!! We will continue this until her level is above 1500 and climbing. We do not know how long the doctors will want to stay on this medicine. The good news is that all this will not lead or develop into leukemia. Also she is expected to grow out of this by the age of 5. Praise God for that. She is doing well, she is walking all over the place almost running at times and into everything. She turned ONE today, she could not go anywhere because of her level nor could we have a party. But, that will all come in due time. We will have a party when the doctor gives us the green light and we will celebrate for her like we have never celebrated!! I did however get her a smash cake for her to tear up tonight I cannot wait to see it, pics will be posted soon. Thank you all for your love and support and all your thoughts and prayers we could not have made it through all of this without you all. You are all our angels. We love you.
As Always Go Hogs,
Brittany